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Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health
Pediatric Heritable Connective Tissue Disorder study group, 1 Jul 2022, In: American journal of medical genetics. Part A. 188, 7, p. 2096-2109 14 p.Research output: Contribution to journal › Article › Academic › peer-review
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Heritable Connective Tissue Disorders in Childhood: Increased Fatigue, Pain, Disability and Decreased General Health: Increased Fatigue, Pain, Disability and Decreased General Health
Warnink-Kavelaars, J., de Koning, L. E., Rombaut, L., Alsem, M. W., Menke, L. A., Oosterlaan, J., Buizer, A. I., Engelbert, R. H. H. & On Behalf Of The Pediatric Heritable Connective Tissue Disorders Study Group, Jun 2021, In: Genes. 12, 6, 831.Research output: Contribution to journal › Article › Academic › peer-review
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Marfan syndrome in adolescence: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs
Warnink-Kavelaars, J., Beelen, A., Goedhart, T. M. H. J., de Koning, L. E., Nollet, F., Alsem, M. W., Menke, L. A. & Engelbert, R. H. H., 1 Dec 2019, In: European journal of pediatrics. 178, 12, p. 1883-1892 10 p.Research output: Contribution to journal › Article › Academic › peer-review
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