The Netherlands Autism Register (NAR) is a longitudinal register, including approximately 3500 individuals with autism. The NAR was established by the Dutch Association for Autism (Nederlandse Vereniging voor Autisme; NVA) in collaboration with the Vrije Universiteit Amsterdam (VU).

The aim of the NAR is to follow the course of development of individuals with autism over time, primarily through online questionnaires. We collect information on a wide range of topics related to the living situation of people with autism in the Netherlands. This way we can identify the differences and similarities between people with autism. The data from the NAR are valuable for scientific research. The NAR also helps people with autism to protect their interests and improve their quality of life.

logo netherlands autism register

Parents of children with autism, people with autism, but also health care professionals and scientists all have questions about autism. Together, we can find answers to these questions. For instance, one person with autism may be able to hold a job, and have a satisfying social life, while the other one, despite similar cognitive skills, fails to do so. What causes such individual differences? What additional problems do individuals with autism develop? What are the benefits of having autism? What are success factors? By following a large group of people we can explore what factors have an impact on their quality of life. 

You can find more information on the NAR website (in Dutch). 

APH contact person: Sander Begeer
Contact: info@nederlandsautismeregister.nl