Amsterdam Public Health

Mareen Datema

MSC.

APH - Global Health APH - Personalized Medicine Affiliatie UvA Other Academic Staff, Endocrinology and Metabolism Research Associate, Endocrinology and Metabolism

Specialization

Epidemiology, Allergy, Immunology

Focus of research

PhD on Food allergies

Food sensitization across Europe
Prediction of severe food allergic phenotypes

Latest publications

Key lessons from the first international treatment eligibility committee: the case of metachromatic leukodystrophy
Schoenmakers, D. H., Asbreuk, M. A. B. C., Martin, T., Datema, M., Beerepoot, S., Inbar-Feigenberg, M., Groeschel, S., Kehrer, C., Øberg, A., Sevin, C., Fumagalli, F., Bergner, C. G., Vieira, P., Bley, A., Uusimaa, J., Horn, M. A., Brožová, K., Stögmann, E., Pichler, H. & Lüftinger, R. & 19 others, Eklund, E. A., Mochel, F., Adang, L. A., Laugwitz, L., Boelens, J. J., Calbi, V., Darling, A., García-Cazorla, Á., Grønborg, S. W., Lindemans, C. A., van Hasselt, P. M., Hollak, C. E. M., de Koning, T. J., Ram, D., Dekker, H., Schöls, L., Zerem, A., Graessner, H. & Wolf, N. I., Jul 2025, In: European Journal of Paediatric Neurology. 57, p. 72-81 10 p.
Research output: Contribution to journal › Article* › Academic › peer-review
Establishing Treatment Effectiveness in Fabry Disease: Observation-Based Recommendations for Improvement
Veldman, B. C. F., Schoenmakers, D. H., van Dussen, L., Datema, M. R. & Langeveld, M., 1 Sept 2024, In: International journal of molecular sciences. 25, 17, 9752.
Research output: Contribution to journal › Review article* › Academic › peer-review
Framework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases
Schoenmakers, D. H., van den Berg, S., Timmers, L., Adang, L. A., Bäumer, T., Bosch, A., van de Casteele, M., Datema, M. R., Dekker, H., Donnelly, C., Driessens, M. H. E., Graessner, H., Greger, V., Haddad, T., Höglinger, G. N. U., van den Hout, H., Jonker, C., Langeveld, M., Lambert, L. J. & Neacy, E. & 12 others, Nieuwland, M., Klockgether, T., van der Knaap, M. S., Papadopoulou, A., Plueschke, K., van Rijn, S., Rosenberg, N., Saunier-Vivar, E. F., Dos Santos Vieira, B., Hollak, C. E. M., Goettsch, W. G. & Wolf, N. I., 22 Aug 2024, In: Neurology. 103, 6, p. 1-12 12 p.
Research output: Contribution to journal › Article* › Academic › peer-review
All publications

Amsterdam Public Health

Mareen Datema

Specialization

Focus of research

Key lessons from the first international treatment eligibility committee: the case of metachromatic leukodystrophy

Establishing Treatment Effectiveness in Fabry Disease: Observation-Based Recommendations for Improvement

Framework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases